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Sarah has a SISTER!!!! Congratulations to Don and Kim upon arrival of Riley Jean Porter - born Sept 30th - 7lbs 5oz and 20" in length. All reported to be doing well!

Update on Sarah Colleen Porter    7/8/2009

Wanted to update everyone of the current situation. We got to NY just fine today and talked with Ylana which is Dr. Waner's nursing assistant about tomorrow mornings surgery around 3pm. Well we just got a call from her saying that Dr. Waner got something in his eye today and is not sure if he will be operating tomorrow. This is a pretty big deal to us because it will throw off our whole trip to get stitches out next week. I am simply telling you all this so that I could get you to pray for Dr. Waner to be able to do Sarah's surgery tomorrow. Hopefully God willing the Dr. will be ok and everything will go as planned I will update tomorrow with the good news or not so good news. God is good

 

 

Update on Sarah Colleen Porter    7/9/2009 

Surgery went well, they lifted Sarah's lip to make it equal with the other side of her lip and fixed some scaring on her eyebrow line. They also did some lasering on her chin. They admitted her into the hospital this time for two reasons one is to prevent the April trip of going back to the hospital and being admitted and two because it was a big surgery and they want to keep an eye on her. I was not able to stay with Kim and Sarah at the hospital so I am back at the apartment fixing to crash. Hope this message finds you well and thank you again for the support.

On a light note when Sarah came out of surgery the Dr. asked Kim and I was she a mommy's girl or a daddy's girl,we both answered by saying both. The Dr. replied saying that the reason he asked was that when Sarah came out of surgery her first word was DADDY. Just wanted everyone to know that, not that it made my day or anything - Chuck

 

Update on Sarah Colleen Porter    7/10/2009

 

Sarah got discharged from the hospital this morning and was so ready to go she didn't even want to put on some shorts as noticed is first picture. We did get to meet a clown jokester at the hospital but I think he brightened up mom and dad more then Sarah.

After getting out of the Hospital, and some good rest, it was time to get out and stretch our legs! So we decided to take Sarah to her favorite place, The Stardust Diner! If you don't already know, its a themed restaurant where they wear poodle skirts etc. and the waiters and waitresses sing some great songs and perform while you eat! Sarah just loves it, its worth the walk, to take her and to see a smile on her face and the enjoyment it brings her!! One of the waiters, he was the first one to sing to her our very first trip, (and he went on to play in the show Wicked on Broadway, ) it was his turn to sing, he made his way around the room, sang a bit to Sarah and said "Welcome back! Your looking good!" It was so nice that he remembered her! She got up and danced, clapped, and had a really good time! At one point some of the staff started doing the twist, and of course Sarah had to start that as well, she did such a good job! It was very cute, wish everyone could have seen her.

 

 

08 - 31 – 2007

Sarah’s Timeline

1. Born, told it was a birthing bruise
2. Next day, we were told it was a Port Wine Stain
3. One week, confirmation on Port Wine Stain
4. Told it would take 10 years to have any growth, and at one year it would be taken off.
5. Two weeks, noticed knot in front of right ear, and thickness above right eye, took Sarah to three doctors in one day…unknown as to cause…CAT scan ordered.
6. Put on steroids for "just in case"
7. Three weeks, CAT scan, results came back as Hemangiomas.
8. Went and saw NC’s best doctor for it, convinced the doctor to give Sarah an MRI.
9. Went to a new doctor, a hematologist, to control and monitor the growth of her Hemangiomas and medicine.
10. Had MRI and found out that Sarah has two inside of her face that we cannot see. One behind her left eye and one running from her left ear to near her airway.
11. Found out through education that what Sarah has are benign tumors, rapidly growing that can take over her face in a matter of a month if not taken care of properly.
12. Once we found out about the two inside of her face, we contacted the two best doctors in America located in Manhattan New York to care for Sarah.
13. Sarah had another MRI two weeks later to check and get a timeline on the growth of the two on the inside.
14. Spoke to the two doctors, planned a trip to see them, and we decided that Sarah needed to have surgery SOON, and flew to see them.
15. Flew to New York, Sarah, Chuck and I met the doctors; felt like we had hope, and Sarah had her 1st surgery the next day.
16. We go back to New York every four weeks for surgery, to take away what has grown on her face.
17. Sarah was taken off of the suppression medicine so that the tumors can grow so the doctors can take more off; Sarah’s tumors have started to grow again, with force.